Sunday, October 5, 2014

Pelvic Congestion Syndrome

On September 11th, 2014, I underwent laproscopic surgery to determine the causes of my debilitating pelvic pain. The doctors had already ascertained the PCOS was causing cysts to develop in and on my ovaries so that was a factor. When I went in for the surgery I was a ball of nervous fear. The doctor had stated quite clearly that I might need at least one of my ovaries removed that day. Since I still hold out hope for children one day that was a blow to the heart.

But the good news is that I still have both ovaries. They are three times the size they are supposed to be but they're still where they have been for the last almost 35 years.

The bad news is that the pain wasn't simply caused by cysts or a twisted Fallopian tube. No, it's Pelvic Congestion. Varicose veins in the pelvic area that can cause pain in every situation. The research I've done since then shows me that I have few options. A full hysterectomy is the most extreme of my choices but I just can't do that yet. I just can't. There has to be something else out there. My doctor says that no doctors in Indiana are working on this condition. There are a few in Indianapolis that are doing similar procedures but nothing that directly relates to what I've been diagnosed with. 

So, the first option of treatment is Progesterone which is a hormone replacement therapy used for women who are postmenopausal, or women who have stopped menstruating and are still in child-bearing years. To be honest, I'm terrified. But I have to do this. I have to do this for my health and for my happiness. 

I will post more as time progresses. 


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